My 7 year old has been complaining about pain in her left Achilles tendon. After x-rays showed no issue, doc advised us to ice it and rest. It seemed to be fine until she started gymnastics. Now the pain has gone from her tendon to her feet, ankles and now up her shins and calves. Her legs/feet often fall numb as well.
While any other parent might think growing pains, as a mama with Fibromyalgia I immediately think the worst. In a panic, I checked her entire body for trigger points. The only spots she said hurt were near her hips. My friend looked at me like an insane person as I pushed and poked all the spots on my daughter’s body that I know are painful for me.
As parents, our greatest fear is something bad happening to our children. And while Fibromyalgia isn’t the worst that could happen, I would never want my child to experience it, especially from such a young age. And it does happen that young. And there would be nothing I could do to stop it. I feel so helpless as I wrap my daughter’s legs in my heating pad and try to ease her pain.
In my head, I envision her having to quit gymnastics and running. I see doctors pushing dangerous medications onto her. I see her losing friends and missing out because she’s in too much pain or she’s too fatigued or she is too depressed. I already feel guilty for passing my anxiety on to her. Now I’ve passed on this life-sucking disease?
So now I am taking a deep breath and looking for the perfect pediatrician knowing damn well how doctors feel about Fibromyalgia. I am risking being laughed at, being seen as crazy for believing this “made-up” disease has now taken hold of my daughter.
But she is worth the risk. I will trust my intuition until I am proven wrong. And this time I really hope I’m wrong.